doc ´ Until I Say Goodbye ¹ Susan Spencer-Wendel
Sense of humor It is a book about life not death One that like Susan will make everyone smileFrom the Burger King parking lot where she cried after her diagnosis to a snowy hot spring near the Arctic Circle from a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage Until I Say Good Bye is not only Susan Spencer Wendel's unforgettable gift to her loved ones a heartfelt record of their final experiences together but an offering to all of us a reminder that every day is better when it is lived with joy The author a journalist in Florida and mother of three was diagnosed with ALS at 44 years old Deciding that she had about a year of health or less left she decided to live it with joy and pack it with as much travel family time friends and fun as possible She takes her Asperger’s son to swim with dolphins has her 14 year old daughter try on wedding dresses at Kleinfeld’s on the premise that she will not live to see the real thing finds her roots in Cyprus tries to see the northern lights in the Yukon and vacations in the Bahamas She also writes a book of course tapping it out with her thumb on an iPhoneThis is an extraordinary journal of positivity adventure hope and love It’s absolutely tear jerking in some places and only a bitter curmudgeon would criticize it So here I go First and foremost this is a family diary; it is a tribute to herself for her children I don’t uestion in the least the need for this tribute for her family but I’m not sure that there’s a wider purpose here beyond family closure as there was with the similar The Last Lecture And I certainly could have been content for her family euphemism for defecation “stink pickle” to stay in the family There’s also a disjointed chronology which means some parts get told twice; surely her co writer could have tightened this up? Finally this may be needlessly picky but Spencer Wendel seems incredibly naïve about a lot of things which distracts from the book’s main point How can an award winning journalist in her forties a mother of three with a master’s degree not have ever even heard of ALS or Asperger’s much less Cyprus’ Green Line? I found that very odd Okay heartless criticism over Spencer Wendel’s an undeniably brave woman and her Buddhist like wisdom remove needless want and you remove pain; don’t fear merely possible negative repercussions but embrace adventure is inspiring; I’m glad for her that she got a movie and book deal for her family’s security even if I find the book a bit too personal to be truly affecting
Susan Spencer-Wendel ¹ Until I Say Goodbye book
Until I Say GoodbyeDeclined Susan journeyed to the Yukon Hungary the Bahamas and Cyprus She took her sons to swim with dolphins and her teenage daughter Marina to Kleinfeld's bridal shop in New York City to see her for the first and last time in a wedding dressShe also wrote this book No longer able to walk or even to lift her arms she tapped it out letter by letter on her iPhone using only her right thumb the last finger still workingHowever Until I Say Good Bye is not angry or bitter It is sad in parts how could it not be? but it is filled with Susan's optimism joie de vivre and Imagine your body slowly becoming paralyzed; trapping you inside of a you that once ran danced and made love Now imagine coming to terms with your life and its ending Susan's journey calls upon you to love with all your soul Luis Carlos Montalván Author of the New York Times Bestseller Until Tuesday A Wounded Warrior and the Golden Retriever Who Saved Him